Cornelia De Lange Syndrome Foundation

Address: (See Map)

30 Tower Lane, #400
Avon, CT 06001

Contact Information:

Phone: (860) 676-8166
Fax: (860) 676-8337
Website: https://www.cdlsusa.org/
Email: [email protected]

Organization Contacts

Executive Director Bonnie Royster
Phone: (860) 676-8166
Email: [email protected]

Description:

The Cornelia de Lange Syndrome Foundation is a family support organization which exists to ensure early and accurate diagnosis of CDLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CDLS, and others with similar characteristics, make informed decisions throughout their lifetime.

CdLS occurs in approximately 1 in 10,000 live births.The vast majority of children diagnosed with CdLS are intellectually delayed, with the degree ranging from mild to severe. Learning disabilities and severe language delays are often present. Although intellectual delay is considered essential for diagnosis, there are cases of people with CdLS who have borderline to normal intelligence

Service Categories

Community, Disabilities and Health Conditions

Geographic Areas Served

  • States CT, WI

Hours of Operation

  • Monday: 7:30 AM-4:00 PM
  • Tuesday: 7:30 AM-4:00 PM
  • Wednesday: 7:30 AM-4:00 PM
  • Thursday: 7:30 AM-4:00 PM
  • Friday: 7:30 AM-4:00 PM

Sites

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Organization Products and Services
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Last Update Date: 05/02/2020

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