Description:

Frontotemporal degeneration is the umbrella term for a range of disorders that impact the frontal and temporal lobes of the brain.

Each disorder can be identified according to the symptoms that appear first and most prominently, whether in behavior (behavioral variant FTD), changes in the ability to speak and understand language (primary progressive aphasia) or in movement (corticobasal syndrome, progressive supranuclear palsy). The clinical syndrome where FTD and ALS occur in the same person is referred to as ALS-Frontotemporal Spectrum Disorder (ALS-FTSD).

AFTD’s mission is to improve the quality of life of people affected by FTD and drive research to a cure. We work every day to advance:

Research. We promote and fund research toward diagnosis, treatment and a cure.
Awareness. We stimulate greater public awareness and understanding.
Support. We provide information and support to those directly impacted.
Education. We promote and provide education for healthcare professionals.
Advocacy. We advocate for research and appropriate, affordable services.